Frequently Asked Questions
For questions not addressed on this page, please email CMIDataUsage@childmind.org or consult the HBN support forum.
For a list of main resources that can be consulted/downloaded from this website consult the HBN Resource Map.
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Data Usage Agreement
- Q: Is there a specific title that the individual signing the DUA as an institutional official should hold? Is this signature required?
- A: There is not a specific position an authorized official needs to hold, but they need to be authorized to sign agreements that bind the institution, and must be an individual different from the principal investigator. This signature is required, and we will not accept a DUA that is missing this signature.
- Q: Can I add multiple individuals under the same DUA (e.g., students of the lab)?
- A: Yes, please send the full names and email addresses of all the individuals who will be included in the DUA to CMIDataUsage@childmind.org together with the DUA.
- Q: If I intend on using HBN data at two different institutions, do I have to complete two separate DUA’s?
- A: Yes, the DUA is non-transferable between PI’s and institutions.
Phenotypic Data
- Q: Why are some of the participants with MRI/EEG data missing information in the “Basic_Demos” file?
- A: Not all participants with imaging data will have had phenotypic data released at the same time. You can see which participants have a full phenotypic file in the imaging phenotypic file from the imaging downloads page.
- Q: When will genetic sampling data be released?
- A: At this time, we are not planning on releasing or running analysis on data for any genetic sampling (hair, blood, saliva, teeth). Those samples will be a stored in a repository indefinitely.
- Q: In the phenotypic data, why is the coding for site different from the scan sites?
- A: Participants’ phenotypic and EEG data are collected at Staten Island, the mobile research vehicle (discontinued), and Midtown Manhattan, and MRI data are collected at Staten Island (discontinued), Rutgers (RUBIC), Cornell (CBIC), and City College of New York (CUNY).
- Q: How do I figure out which participants are healthy controls?
- A: The files Diagnosis_ClinicianConsensus and Diagnosis_KSADS contain diagnostic information for participants. While for most participants diagnoses will be consistent between the clinician consensus and the computerized KSADS results (the clinician consensus diagnosis is determined from the KSADS results, as well as from other assessments), the clinician consensus diagnosis data include a wider range of diagnoses, including autism and learning disorders. Please note that there are also data available for non-computerized KSADS, although it is no longer administered. For more information about the diagnostic process, see Diagnostic Process.
- Q: Where can I find data for ADOS and ADI-R?
- A: We don’t currently have any ADOS/ADI-R data available.
Neuroimaging Data
- Q: Are there MRI preprocessed data available? If so, where are they located, and is there documentation available?
- A: MRI data have been preprocessed using Mindboggle and CPAC and are available in S3 under the directory /fcp-indi/data/Projects/HBN/derivatives/Freesurfer_version6.0.0 and /fcp-indi/data/Projects/HBN/CPAC_preprocessed_Derivatives. While HBN has continued releasing MRI data, previous preprocessed effort was terminated earlier than Release 11, thus no more data will be released which were preprocessed through these pipelines. We are currently working on a new preprocessing pipeline and newly preprocessed data will be shared in future releases. This preprocessed dataset will include HBN MRI data up to release 10 and data from other large neuroimaging datasets.